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Judy (judy214)


April 8, 2008


Glasgow, Ky


valentines day 2/14


Breast Cancer


IDC


July 2007


Stage 1


1.1 - 2.0 cm


Grade 3


Positive


Positive


No


No


Lumpectomy, Lymph Node Removal


Yes


Femara


the pain and running to the doctors.


not to take life for granted to live each day to the fullest


none found on mammogram


lumpectomy and SNB all went well had trouble with drainage and had to have it drained a few times. Now having problem with fluid in breast


33 rads very little burning only the last couple boost treatments is all.


N/A


started arimidex in Dec. 2007 could not toleerate the joint pain was switcehd to femara April 4 2008, having problems with it also trying to figure out a pain manage ment plan and how to quit being hungry…




judy214's Cancer Blog

May 13, 2008

interesting articleViews: 191

AFTER YEARS OF TELLING PEOPLE CHEMOTHERAPY IS THE ONLY WAY TO TRY (TRY THE KEY WORD) AND ELIMINATE CANCER, JOHN HOPKINS IS FINALLY STARTING TO TELL YOU THERE IS AN ALTERNATIVE WAY

Cancer Update from John Hopkins

1. Every person has cancer cells in the body. These cancer cells do not show up in the standard tests until they have multiplied to a few billion. When doctors tell cancer patients that there are no more cancer cells in their bodies after treatment, it just means the tests are unable to detect the cancer cells because they have not reached the detectable size.

2. Cancer cells occur between 6 to more than 10 times in a person’s lifetime

3. When the person’s immune system is strong the cancer cells will be destroyed and prevented
from multiplying and forming tumors.

4. When a person has cancer it indicates the person has multiple nutritional deficiencie s. These
could be due to genetic, environmental, food and lifestyle factors.

5. To overcome the multiple nutritional deficiencies, changing diet and including supplements will strengthen the immune system.

6. Chemotherapy involves poisoning the rapidly-growing cancer cells and also destroys rapidly-growing healthy cells in the bone marrow, gastro-intestinal tract etc, and can cause organ damage, like liver, kidneys, heart, lungs etc.

7. Radiation while destroying cancer cells also burns, scars and damages healthy cells, tissues and organs.

8. Initial treatment with chemotherapy and radiation will often reduce tumor size. However prolonged use of chemotherapy and radiation do not result in more tumor destruction.

9 When the body has too much toxic burden from chemotherapy and radiation the immune system is either compromised or destroyed, hence the person can succumb to various kinds of infections and complications.

10. Chemotherapy and radiation can cause cancer cells to mutate and become resistant and difficult to destroy. Surgery can also cause cancer cells to spread to other sites.

11. An effective way to battle cancer is to starve the cancer cells by not feeding it with the foods it needs to multiply.

CANCER CELLS FEED ON:

a. Sugar is a cancer-feeder. By cutting off sugar it cuts off one important food supply to the cancer cells. Sugar substitutes like NutraSweet, Equal,Spoonful, etc are made with Aspartame and it is harmful. A better natural substitute would be Manuka honey or molasses but only in very small amounts . Table salt has a chemical added to make it white in color. Better alternative is Bragg’s aminos or sea salt.

b. Milk causes the body to produce mucus, especially in the gastro-intestinal tract. Cancer feeds on mucus. By cutting off milk and substituting with unsweetened soya milk cancer cells are being starved.

c. Cancer cells thrive in an acid environment. A meat-based diet is acidic and it is best to eat fish, and a little chicken rather than beef or pork. Meat also contains livestock antibiotics, growth hormones and parasites, which are all harmful, especially to people with cancer.

d. A diet made of 80% fresh vegetables and juice, whole grains,seeds, nuts and a little fruits help put the body into an alkaline environment.About 20% can be from cooked food including beans. Fresh vegetable juices provide live enzymes that are easily absorbed and reach down to cellular levels within 15 minutes to no urish and enhance growth of healthy cells. To obtain live enzymes for building healthy cells try and drink fresh vegetable juice (most vegetables including bean sprouts)and eat some raw vegetables 2 or 3 times a day. Enzymes are destroyed at
temperatures of 104 degrees F (40 degrees C).

e. Avoid coffee, tea, and chocolate, which have high caffeine.Green tea is a better alternative and has cancer-fighting properties. Water-best to drink purified water, or filtered, to avoid known toxins and heavy metals in tap water. Distilled water is acidic, avoid it.

12. Meat protein is difficult to digest and requires a lot of digestive enzymes. Undigested meat remaining in the intestines become putrified and leads to more toxic buildup.

13. Cancer cell walls have a tough protein covering. By refraining from or eating less meat it frees more enzymes to attack the protein walls of cancer cells and allows the body’s killer cells to destroy the cancer cells .

14. Some supplements build up the immune system (IP6, Flor-ssen ce,Essiac, anti-oxidants, vitamins, minerals, EFAs etc.) to enable the body’s own killer cells to destroy cancer cells. Other supplements like vitamin E are known to cause apoptosis, or programmed cell death, the body’s normal method of disposing of damaged, unwanted, or unneeded cells.

15. Cancer is a disease of the mind, body, and spirit. A proactive and positive spirit will help the cancer warrior be a survivor. Anger, unforgiveness and bitterness put the body into a stressful and acidic environment. Learn to have a loving and forgiving spirit. Learn to relax and enjoy life.

16. Cancer cells cannot thrive in an oxygenated environment. Exercising daily, and deep breathing help to get more oxygen down to the cellular level. Oxygen therapy is another means employed to destroy cancer cells.

(PLEASE FORWARD IT TO PEOPLE YOU CARE ABOUT)

CANC ER UPDATE FROM JOHN HOPKINS HOSPITAL , U S – PLEASE READ

1. No plastic containers in micro.

2. No water bottles in freezer.

3. No plastic wrap in microwave.

Johns Hopkins has recently sent this out in its newsletters. This information is being circulated at Walter ReedArmy Medical Center as well.
Dioxin chemicals causes cancer, especially breast cancer.

Dioxins are highly poisonous to the cells of our bodies.
Don’t freeze your plastic bottles with water in them as this releases dioxins from the plastic.

Recently, Dr. Edward Fujimoto, Wellness Program Manager at Castle Hospital , was on a TV program to explain this health hazard. He talked about dioxins and how bad they are for us.. He said that we should not be heating our food in the microwave using plastic containers.

This especially applies to foods that contain fat. He said that the combination of fat, high heat, and plastics releases dioxin into the food and ultimately into the cells of the body. Instead, he recommends using glass, such as Corning Ware, Pyrex or ceramic containers for heating food. You get the same results, only without the dioxin. So such things as TV dinners, instant ramen and soups, etc., should be removed from the container and heated in something else.

Paper isn’t bad but you don’t know what is in the paper. It’s just safer to use tempered glass, Corning Ware, etc. He reminded us that a while ago some of the fast food restaurants moved away from the foam containers to paper. The dioxin problem is one of the reasons.

Also, he pointed out that plastic wrap, such as Saran, is just as dangerous when placed over foods to be cooked in the microwave. As the food is nuked, the high heat causes poisonous toxins to actually melt out of the plastic wrap and drip into the food. Cover food with a paper towel instead.

Great info in fact I printed it out…...
Thanks again. This is my third time in 4 years I have been battling this darn breast cancer…
This info will be helpful
Cheryl58

I sure hope the info helps you some. three times in four years, ouch…...I will add you to my prayer list in hopes that you will do ok with no more recurrence…...

Yeay ! Yippee! in the 1980’s I went to p training, not having ANY IDEA what I was in for…
..
Long story short – they admitted they knew the natural cures for breast cancer and others (most)
but
would not teach dktrs (they own the schools)
because
they can not patent the natural helps. (like vit a for luke; well known in europe and meico)
..
My wife got latrile in st.louis after she was dignosed with 3 months to live.
That was in or about 1988.
She was FREE OF CANCER by 1989
and is still alive (as far as we know:) )
Dr.David Ball had gone to mex 20 years earlier and gotten cured of skin cancer without cutslashorburn (I met several people who went
to mex and returned whole and complete
at low cost recovered from various stages)
He was very successful importing and using latrile for cancer patints AND ESPECIALLY FOR PAIN PAIN PAIN , YES FOR PAIN - Laetrile (and other enzymes also RE Maureen Salaman) is one of the BEST pain relievers and has NO BAD EFFECTS and NO WITHDRAWAL symptoms)

all of this is interesting. I wish I could find some natural supplement good for pain that would work on the pain from femara….Anyone know of anythng from arthritis induced pain in joints?

Please read the following…

http://www.snopes.com/medical/disease/cancerupdate.asp

The article you posted is not true…from John Hopkins…

whoops….I should have checked it out when I received it in email I guess….Oh well it sounded good….

Hey Judy,

I just can’t believe how many people I talk to and it’s a shame that more and more people are being diagnosed with cancer. I really wonder if it is our environment sometimes. I just wonder…..... ya know.

My BC did not show up a my mammogram too. My lump was almost to my collar bone area. But I can honestly say that I know I am doing everything possible to prevent the BC from coming back. I have two boys 5 & 7 and I want to be around a long time for them. That is the worst thing to hear from your kids “Mom are you going to die?” I am very open and honest with my boys and tell them to ask me anything they want and we talk about everything. They are so excited that my hair is growing back. They told me – “look mom you are getting better, your hair is coming back”.

Enjoy every day!

Doris.

for pain, there is a simple, several simple helps.
that work better than prscrptins items. read maureen salamans books.
including “nutrition the cancer answer”
and other by dr.max gerson,
carey reams,
krebs,
hoxsey, et al et al et al….

the truth is cancer is a deficiency disease, and can almost always be remedied nutrionally – people have even cured themselves by dietary means.
.

also, see”G-d’s Key to Health and Happiness” by pastor josephson (available from ks, his wife is over 80 and still making it available).
.

DO NOT TURST the ama – they R controlled by $$$..

but do what you want, ...

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April 22, 2008

evistaViews: 217

I have a question here. I was told by someone if I was having all this trouble with arimidex and femara with the joints to ask my doctor about evista. Has anyone heard of this being used for a medication to help against the return of er/pr positive breast cancer? I have been told the side effects are much less and the joint pain does not happen with the evista. Would like some input on this if you know anything…Thanks Judy

Judy, I have the same kinda of breast cancer and I have never heard of evista. It sounds good if you get more info please share it with us (which I know you will ) I am currently taking Xeloda and chemo right now but when I am done he will be putting me on something to keep the cancer at bay. I will ask him on Monday about the drug and will let you know what I find out…
Cheryl58

Let me know what you find out from your doc. I think it is given though for people with a high risk that have not already had bc…I will talk to my onco when I see him but it will probably result in nothing…..Thanks

Dear Judy; I joined another blog and found that there are soma answers on the drug you were asking about. Here is the website so just type in whatever you are questioning and help will pop up. Hope you are well. Weezie.
http://www.cancerbackup.org.uk/Search

What is Evista?
Feedback for Evista
0 CommentsRate it!7.0Evista affects the cycle of bone formation and breakdown in the body, and reduces loss of bone tissue.

Evista is used to treat or prevent osteoporosis in postmenopausal women. It is also used to reduce the risk of invasive breast cancer in postmenopausal women who have osteoporosis or who are at risk of invasive breast cancer.

Evista may also be used for other purposes not listed here.

Important information about Evista
You should not use this medication if you are allergic to raloxifene, if you are pregnant or breast-feeding, or if you have ever had a blood clot. Although it is not likely that a postmenopausal woman would be pregnant, Evista can cause birth defects and should not be used during pregnancy. Tell your doctor right away if you become pregnant during treatment.
Before taking Evista, tell your doctor if you smoke or if you have coronary artery disease, heart disease, high blood pressure, liver or kidney disease, a history of stroke or TIA, high triglycerides, if you have not gone through menopause, or if you have had breast cancer in the past.

If you need to have any type of surgery or will be on bed rest, you will need to stop taking Evista for at least 72 hours before your surgery or before you plan to be immobile. Any doctor or surgeon who treats you should know that you are taking Evista.
Avoid sitting still for long periods of time during travel while you are taking Evista.

Stop taking this medication and call your doctor at once if you have a serious side effect such as
Before taking Evista
You should not use Evista if you are allergic to raloxifene, if you are pregnant or breast-feeding, or if you have ever had a blood clot.
Before taking this medication, tell your doctor if you smoke or if you have:

coronary artery disease (atherosclerosis);

heart disease;

high blood pressure;

liver or kidney disease;
a history of stroke or TIA (“mini-stroke”);

high triglycerides (often occurs with high cholesterol);

if you have not gone through menopause; or

if you have had breast cancer in the past.

If you have any of these conditions, you may need a dose adjustment or special tests to safely take Evista.

FDA pregnancy category X. Although it is not likely that a postmenopausal woman would be pregnant, Evista can cause birth defects and should not be used during pregnancy. Tell your doctor right away if you become pregnant during treatment. It is not known whether Evista passes into breast milk or if it could harm a nursing baby. Do not use this medication without telling your doctor if you are breast-feeding a baby.
How should I take Evista?
Take this medication exactly as prescribed by your doctor. Do not take it in larger amounts or for longer than recommended. Follow the directions on your prescription label.

Evista can be taken with or without food.

You may take Evista at any time of the day, but try to take it at the same time each day.

If you need to have any type of surgery or will be on bed rest, you will need to stop taking Evista for at least 72 hours before your surgery or before you plan to be immobile. Any doctor or surgeon who treats you should know that you are taking Evista.
Evista is only part of a complete program of treatment that may also include diet, exercise, calcium or vitamin D supplements, and weight control. Follow your diet, medication, and exercise routines very closely.

Store Evista at room temperature away from moisture and heat.
What happens if I miss a dose?
Take the missed dose as soon as you remember. If it is almost time for your next dose, wait until then to take the medicine and skip the missed dose. Do not take extra medicine to make up the missed dose.

What happens if I overdose?
Seek medical attention if you think you have used too much of this medicine.

Overdose symptoms may include leg cramps and dizziness.

What should I avoid while taking Evista?
If you take calcium supplements, do not take more than your doctor has prescribed. Taking more calcium than recommended will not provide extra protection for your bones, and may cause serious side effects including kidney stones.
Avoid sitting still for long periods of time during travel while you are taking Evista.

Evista side effects
Get emergency medical help if you have any of these signs of an allergic reaction: hives; difficulty breathing; swelling of your face, lips, tongue, or throat. Call your doctor at once if you have a serious side effect such as:
sudden numbness or weakness, especially on one side of the body;

sudden headache, confusion, problems with vision, speech, or balance;

chest pain, sudden cough, wheezing, rapid breathing, fast heart rate;

pain or swelling in one or both legs;

swelling in your hands or feet;

fever, chills, sore throat, body aches, flu symptoms;

unusual vaginal bleeding;

breast pain, tenderness, or lump;

pain or burning when you urinate; or

severe pain in your lower back.

Less serious side effects may include:

hot flashes;

headache, dizziness, spinning sensation;

leg pain;

joint pain;

increased sweating;

nausea, vomiting, stomach pain; or

runny or stuffy nose.

This is not a complete list of side effects and others may occur. Tell your doctor about any unusual or bothersome side effect.

What other drugs will affect Evista?
Before taking Evista, talk to your doctor if you are taking any of the following medicines:

cholestyramine (Questran, Prevalite);

a blood thinner such as warfarin (Coumadin); or

diazepam (Valium);

diazoxide (Proglycem); or

birth control pills or hormone replacement therapy.

Dear Judy; Having read up on this new drug that you might go on, don’t forget that these various drugs are the bones. Armidex and Taxol are given to stop the flow of estrogen, which in turn, hopefully prevents the spread of the breast cancer. I am taking as you know, Arimidex (and living wiht the side effects, even though it is tough, but I also take – CLASTEON which is in a group of drugs called bisphosphoates. YOu might want to surf the web and find out about the various ones. I was doing this through an i.v. once a month but just couldn’t imagine doing this for life, like that. So I spoke with my Oncologist to see if he would put me on an oral dose which he said was fine. I take 4 pills daily, 2 in am 2 at bedtime. Only thing is you must take it on an empty stomach. Get your notes and take them with you when seeing the Oncologist. It is the only real time that you get to interact with other ideas on your treatment. Good luck. P.S. I am feeling much better now. I just get a monthly massage and try to exercise out the kinks. I know it is not pleasant but I would rather stick to a plan that works than jump off the bandwagon and take chances. Weezie

I thnk you are right and I do not htink it is the type of drug that I need to be on right now. It was brought to my attention though and I thought may as well check it out of the side effects are better….Oh well what can I say….lol

The pictures you posted were great wish I was there right now!

boy did I ever make a few typing mistakes in that last post….....duh…

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April 8, 2008

onco dx testViews: 248

How many here had the onco dx test and what was your scores? I am curious as to scores people received….

Hi Sue; What is an onco dx test? Never heard of it and it looks like you and I had the very same surgery. I had 26 rad treatments last Sept/Oct. Are taking anything for your bones? I think I mentioned to you in response to your email that I switched from an i.v. bisphosphonate to an oral drug that I take- 2 pills twice daily. So much better than the monthly visit to the hospital and then poked several times before the i.v is inserted properly (my veins roll and that is why it becomes like a pin cushion event). Then I would leave and it would drain for 3 hours and I would take out the needle and throw away the bottle. In any case I was so happy I did research on the internet to find that I could take an oral dose of the drug instead. It really pays to investigate. I have no idea why my Oncologist did not give me my options back in January. No worry as I have figured it out and am pleased to say that I much prefer remembering to take my pills than tripping monthly to the hospital for the jab, poke, painful event. As far as the Arimidex goes I am still on it. Yes there is bone and muscle pain but I am going to try swimming to aleviate some of the side effects. Since I have to do this for at least 5 years I better get used to it. Since being on Blog For A Cure, I have discovered that my situation is no where near most of the others and am thankful every day for where I stand at this time. There are just so many brave, intelligent, strong survivors on this blog and I am so happy you joined. I think you will really benefit from some of the stories. I try to make my way to each person and read ALL their posts. It kind of gives be a chronological understanding of their medical situation. Take care and see you on the site I hope. Keep everyone posted as to your progress. OK? “Weezie”

Hey Weezie….the oncotype dx test is where they take a piece of your tumor and run gene test on it and it gives them an idea of your chance of recurrence. On a scale of 1 to 100 I think 1 to 17 was a low risk, 17 to 33 was in the grey intermediate risk and above 33 was high risk. Naturally I scored an 18…As usual I cannot do things where you feel really comfortable I have to always go into the grey zone where it is scratch your head and wonder…lol Anyway with mine being an 18 that is why I decided not to do any chemo.

I am having better luck with the femara. Hot flashes not as bad and sleep is some better and the pain is still there but there are days it is tolerable. NOw if I can figure out a way to exercise pain free maybe I can quit eating and get th is weight back off…I would join the YMCA and use the pool but it is just to much of a job to get myself in there everyday or so to work out…I will figure out something thought about buying just a small pool that I could do some sit down exerecising in at home for the legs…

Ok I am gone my sister and a friend of hers are on their way to go to church with me….catch ya later

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femara or arimidexViews: 389

http:///2008/04/08/

Hi…I am Judy and was found to have breast cancer in July 2007. Was found by mammogram. Was a stage one grade three no nodes and clear margins with lumpectomy. My onco dx score was an 18. I opted out of chemo and did the rads. I was put on arimidex the first of Dec. and just got switched to femara about a week and a half ago. I hate these meds even though I am sure they are helping me immensly. I have such horrible joint pain. My doctors have not done any bone scans or anything like that. Should I suggest to them to do so? Have been having problems with fluid retention in the breast and have had a few infections from this but surgeon does not want to drain. No one seems to understand what a person goes thru unless they have been there themself. Has anyone found anything useful or a good pain pill that works for the joint pain? Any suggestions would be appreciated…

Dear Judy; So pleased to see that you joined the group. Good luck tomorrow. I hope you ask your Oncologist about the drugs for your bones. In my email I gave you some sites to look at. Recommend you print some info on the biphosphonates and discuss it with him. Since you have only a few precious minutes with the Doc be prepared with all your questions. Sorry to hear the femara is causing you the same problems as the Arimidex. Not sure what to say on that score as I think no matter what drug, it will cause some side effects that may be disturbing. Hopefully someone on this blog will have the answers you are looking for re your pain. I’m thinking of going to the Community Centre to swim. Maybe that will help me. By the way I am always hungry too. Another one of the side effects that most complain about. Anyway welcome and take a peek around. there are many people going through much worse problems and that really puts it into perspective for me. All is well. Take care. Weezie from Canada eh.

Judy welcome to the group. I have been on both these drugs. So I do know about the site effects. I found Advil to help, I started taking fish oil capsules vitamin D you can take the vitamin D with calcium but if you do that make sure your Dr. checks your calcium levels in you blood before plan D is ok. Also don’t think I am crazy but this works you can Google it under apple cider cures. I drink two table spoons of organic (Briggs) apple cider with honey to taste in 8 oz of water start if you can 3x a day then if you can stay on it that good if not at least once a day it really works not only that it helps with hot flashes! I found the Femara was easier on me then the Armidex. If you can get into a water exercise class that helps also. Hang in there and keep us posted on how your are doing
Cheryl58

Thanks for the replies….If I could get rid of the knee and foot pain with the femara I could handle the rest of the side effects. I do have trouble sleeping and the hot flashes are a lot better. I had lots of palpitations on the arimidex but no so yet on the femara. The pain is the part I am having trouble coping with and it is hard when there are days you feel like you cannot move.

I am having another problem with fluid in the breast and the doctor does not want to drain it. He has me wearing a sports bra 24/7 and now the breast is irritated and red. The onco thought it looked infected but the surgeon says no it is dermitis. I am about ready to throw my hands up and run really fast and find some more doctors…ha ha Has anyone had this problem with the fluid in the breast?

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